Welcome to F.E.S.T
Foundation Exploring Skeletal Dysplasia Together
Our foundation sets out to
promote the welfare of persons affected by skeletal dysplasia commonly known as restricted growth.
How We Help
By sharing research, innovation, and collaborations, as well as clinical patient support experience, together, we work towards a more informed approach to medical treatment from infancy to later life.
Advocating for Patients
We support research that can improve quality of life and reduce health complications and pain. We believe people with skeletal dysplasias and their families have the right to informed decisions regarding healthcare. We aim to produce a wide range of resources that cover all aspects of living successfully with skeletal dysplasia.
Better Outcomes for People with Skeletal Dysplasias
One of our goals is to work to establish better guidelines for treating Skeletal Dysplasias throughout a person's life. We lose too many adults with Skeletal Dysplasia too young. We advocate for more research and advocacy for UK wide specialist treatment.
