A Consensus Paper to promote the rights of people living with Skeletal Dysplasias with Dwarfism
Over the last two years, FEST members have been actively involved in the development of a Consensus Paper entitled For an EU that cares...
Understanding of skeletal dysplasias, their complications and how they can be managed has hugely improved in the last 20 years.
As understanding has increased in the clinical setting, pharmaceutical research has also identified potential therapies. At F.E.S.T., we support research that can improve quality of life and reduce health complications and pain. We support informed decision making for people with skeletal dysplasias and their families.